Young adulthood can be a challenging time for Type 1 Diabetes (T1D) self-management as individuals can find it difficult to navigate this time of transition. There is a need for effective interventions to improve outcomes for young adults. D1 Now, led by Prof Séan F Dinneen in the School of Medicine, NUI Galway, aims to improve self-management and diabetes-related health outcomes for this population.
A central value of the D1 Now project is Public and Patient Involvement (PPI). To ensure that key stakeholder involvement was embedded throughout, the D1 Now team formed a Young Adult Panel (YAP) who act as co-researchers. The YAP consists of young adults, aged 18-25 years, living with T1D in the Galway area.
Together, the D1 Now team are refining this intervention based on development work to date. During this modelling and refining phase, the YAP will assist the research team in conducting iterative cycles of focus groups with other young adults who live with Type 1 Diabetes. The YAP will work on all aspects of this process from topic guide creation to data analysis.
In order for the YAP to engage meaningfully with this co-researcher role, training in qualitative research methods was needed. QUESTS members Dr Andrew Hunter and Dr Louise Murphy recently facilitated a workshop with members of the YAP. This introductory workshop provided a broad background in qualitative work, with resources for future group work to practice with. This workshop was the first step in acquiring the knowledge and skills for the YAP to work alongside the research team members to complete this work by Autumn 2018.
D1 Now is funded by the Health Research Board DIFA award.
Pictured: Dr Andrew Hunter (QUESTS Co-Chair) and Dr Louise Murphy (QUESTS Education Working Group Lead) pictured with members of the D1 Now Team – the D1 Now Study Panel, Dr Deirdre Walsh (D1 Now Programme Manager) and Dr Bláithín Casey (D1 Now Postdoctoral Researcher).